The Australian Autism Spectrum Disorder and ADHD Study aims to improve our understanding of the financial, emotional and educational impacts on individuals and their families who are living with ASD and ADHD and the genetic factors that influence these traits.
The QIMR Berghofer Medical Research Institute is interested in finding out what has worked for you and your family and what hasnโt.
ABOUT THE STUDY
The purpose of the Australian ASD and ADHD Study (AAA Study) is to try and improve our understanding of the emotional, educational, employment and financial impacts on individuals and their families who are living with Autism Spectrum Disorder (ASD) and Attention Deficit Hyperactivity Disorder (ADHD). We are also investigating the genetic factors that influence these traits and their impacts.
To study the impact of ASD and ADHD on individuals and families, the QIMR Berghofer Medical Research Institute would like to collect information on experiences with health, education and employment. They are interested in finding out what has worked for you and what hasnโt.
This study is open to:
Individuals who are 18 or over and have been diagnosed with or treated for ASD and/or ADHD Parents/caregivers of a child (or children) under 18 who has been diagnosed with or treated for ASD and/or ADHD
WHO IS RUNNING THE SURVEY?
The Australian ASD and ADHD Study is being conducted by researchers from the Mental Health Research Program at the QIMR Berghofer Medical Research Institute, a not-for-profit research institute located in Brisbane, Queensland. QIMR Berghofer is a world-leading medical research institute, renowned for our efforts in both discovery and translational (real patient setting) research.
WHAT DIFFERENCE CAN I MAKE BY PARTICIPATING?
Participating in this study can contribute to improving outcomes for individuals and families living with ASD and ADHD.
One of the things QIMR Berghofer are looking at in this study are barriers and problems with access to and delivery of health and education services. They hope that by collecting this information from members of the ASD and ADHD communities they will be able to identify barriers that could be addressed to improve access and service delivery.
There is no direct clinical benefit to participants. This is not a treatment-based study or clinical trial.
WHAT DOES THE SURVEY INVOLVE?
If you choose to participate, you will be asked to fill in an online survey.
The survey asks you about experiences with ADHD and/or ASD, interactions with health care, support needs, educational experiences, costs and lifestyle impact.
You may also be asked to supply the QIMR Berghofer Medical Research Institute with a sample of saliva, which they will use to extract DNA to look for genetic factors that influence these traits.
HOW LONG DOES IT TAKE?
The survey may take around 30 minutes.
The QIMR Berghofer Medical Research Institute may contact you after the survey is completed to discuss donating a saliva sample. If you agree to give a saliva sample, they will send you a sample collection kit through the post. Saliva samples can be collected in the privacy of your own home at a time that suits you. Providing a sample takes about 5-10 minutes. The saliva sample is sent back to the QIMR Berghofer Medical Research Institute through the post using a pre-paid envelope.
I AM READY TO PARTICIPATE โ WHAT NEXT?
To find out more or to participate, please head to: www.aaastudy.org.au
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